Medtronic 670G: Experiences of a Mom + Daughter with T1D

Medtronic 670G Insulin PumpMy 15 year old daughter and I both started on the Medtronic 670G system in July. With 2 1/2 months of use under our belts, we have had common, yet unique, experiences with the Medtronic 670G tech.

As many people report, some magic happens between weeks 3 and 5. There was a turning point in which we both became happier with the results and user interface/ demands.

[Our initial experience, one week in, is documented in this piece: A Nurse’s Review: Medtronic 670G Insulin Pump.]

Chew on this: I don’t buy juice anymore.

This is huge, especially in a household that has two very active people under one roof – that both have T1D. I had the habit, on occasion, of pouring my daughter 3 glasses of juice overnight after a big basketball practice or some crazy family adventure in the mountains. I can thankfully report that this behavior is a thing of the past.

Like it or not, midnight picnics are common for those of us living with type 1 diabetes. Our dentists may agree that the 670G may be worth it’s weight in gold with the simple elimination of the sugar bath on our teeth all hours of the day and night.

Hands down, the best feature of this pump/ sensor combo is the near elimination of hypoglycemia (low blood sugar) – particularly overnight when we are at our most vulnerable.

Over the past few months I have put this thing to the test. I trained for and completed a 102 mile bike ride for JDRF Ride to Cure in Loveland, Colorado. I’ve spent a lot of time in the saddle with this sensor and pump over some strenuous miles at higher elevations.

My overall impression is quite positive at this point – I have no desire to go back to my previous pump or a pump/continuous glucose monitor (CGM) that don’t speak to one another.

Do I have high blood sugars? Yes.
Do I get frustrated? Yes
Are there gaps between my blood glucose and sensor glucose readings? Yes.
Is this system the best we’ll see? No.

The Medtronic 670G is a work in progress that will only continue to see improvements – and competition – over the next few years, but for now, it’s king.

My Positives:

  • Quality sleep improvements – Because my sugars are normal overnight, as are my daughters, sleeping has seen huge improvements. I’m worried less about her having lows overnight.
    ***I haven’t had 1 overnight low since I started on the 670G.***
  • Exercise – I do really love exercising with this system (minus the fact that there isn’t information sharing – so I can’t see my sensor reading on a watch). If I want to see my sensor reading, I have to take an awkward glance at my pump that sits on my waistband – with the updated vertical screen. This may be the death of my neck – so awkward from the user’s perspective. Medtronic would be well served to have a physical therapist on their team analyzing how their new products impact a person’s movements.
    I choose not to use the “temp target” feature for exercise, it always makes my blood sugar creep into the 200 range. I leave my pump as is, and eat free carbs throughout my ride – this is the only time I don’t tell the pump that I’m eating.
  • Eating – Eating is a new thing. I’m a thin person and not looking to lose weight, but I lost 7 pounds without trying. I’m actually trying to gain it back – my body, I think, is like – “Hey! Where are all the simple sugars?” I have actually been in bed trying to fall asleep, realized I was hungry and went to the kitchen to eat.
    It’s been an interesting transition for me, after 30 years of diabetes, not having to eat in order to keep my sugars in line. The adjusting micro-basal is so smart. I’m eating more healthy whole foods and larger portions at meals than I used to – I’m also getting more accustomed to this new pattern of “not eating for diabetes.”
  • Adjustments – There are only a few things to adjust on the back end with this pump – namely the active insulin time (AIT) and carb ratios (CR). Most people find themselves settling in with a 2 hour AIT or the pump won’t correct a high blood sugar in a timely manner. Carb ratios undergo serious changes for most people – especially those of us that had high basal rates prior to the 670G.
    When bolusing for meals, the micro-basal usually shuts down altogether. I believe this is why we need such tight carb ratios. It’s a bit of a science experiment to find the correct CR’s.

My Negatives:

  • Low blood sugars: As I mentioned previously I hardly ever get lows, but that doesn’t mean that the sensor doesn’t give me incorrect warnings.
    When this happens – and I’m not actually low (verified with a BG test), the micro-basal delivery turns off. During this time, if it’s telling me I’m 50 and I’m actually 100, it’s one of those times that you shouldn’t enter your BG or calibrate because the gap in numbers is too wide.
    So, if you leave the pump/sensor “as is,” it will result in a high blood sugar -  rather than leaving you at your excellent BG of 100. Yes, frustrating.
    I choose to revert to manual mode when this occurs or sometimes take insulin and eat carbs without entering a blood sugar and that helps bridge the gap. But ultimately, it means another BG to get things squared away with the sensor – usually 20 minutes later.
    And speaking of alerts, this system took a large step backwards without the communication piece to mobile phones and watches – especially if you are a parent of a child living with T1D. This pump/sensor duo isn’t the end all, it needs parental interventions. Kids need reminders and they really dislike when we have to look on their pump screen to find the data we are looking for. Nightscout has a workaround, but it demands a glucometer be attached to the the users phone. My highschooler would never go for that.
Arrow is pointing at the micro-basal delivery

Arrow is pointing at the micro-basal delivery

  • Sensor Life: Initially, I had some serious sensor failure issues. I would get the “Updating Sensor” warning which would ultimately end up with a failed sensor, on a regular basis. I have had 3 or 4 sensors last the 7 days they should since I started on this pump (ugh).
    I have figured out that there is some kind of an issue with my 670G and my work in recovery room at the hospital as a nurse. All I can figure is that the “loop” between patient cardiac monitors and vital signs that feeds information to the bedside computer is interfering with my “670G loop.” Medtronic doesn’t have any suggestions other than using manual mode which is unfortunate.
    *Medtronic did send me a new transmitter and that has helped with failing sensors a bit. They have also replaced every failed sensor.*
  • Algorithms: It takes a bit for the pump to “get to know you.” If you’re anything like me, I have my regular stuff, but I’m not the most predictable person in the world. Some days I’m working, some days I’m riding my bike 50 miles. I think the more predictable our behaviors are the better results we get from the algorithm.

Medtronic 670G

  • A Higher A1C? Well, I’m not sure if I should classify this as a negative, but I know my A1C will be higher. The predictive value on my pump for my next A1C is 6.8 – not bad – but I’m always 5.9 – 6.1.
    Here’s why – there are no lows to bring that value down. It is a solid 6.8 that I’m continuing to make pump adjustments for. This pump rarely keeps me at 120 like it says the target is, I often wish it adjusted me a bit tighter. I often check and I’m 140 when it says 120 on my sensor. I wish it had the option to adjust to 100.
    Rarely do I have sugars in the 80′s and 90′s like I once did. But I also had lows or was averting lows throughout the day.

I think with this tech comes the realization that our once coveted A1C value will change – and so should our perspectives about them.

  • “The Loop”: This endearing term (tongue in cheek) stands for one of the most frustrating things that occurs with this pump. The 670G, especially when fed too much information, or information at inappropriate times – freaks out.
    The best solution to this problem is to treat your pump like a 2 year old having a tantrum. Don’t feed into the issue at hand. Be patient, wait and don’t enter information if the BG and SG are more than 30% off, or you will experience the dreaded loop. Is this inconvenient? You betcha.

I realize nothing is perfect. As a parent of a child with the same 24/7 deal, I appreciate some aspects of the 670G, while I’m not so hip on the others. I’ve always said if our kids can have normalized blood sugars overnight, then that’s half of their life within range. That’s pretty impactful – right?

Kids aren’t as attentive as the average adult and this pump isn’t “hands off,” it has it’s odd set of demands – and they can be confusing. I’m most concerned with the negative feedback loop that occurs when the pump is asking for information, but it really doesn’t want you to enter it, or you will confuse the already confused system, and it may result in an aborted sensor.

With kids we are constantly drilling into their heads – “Just do it!” But with the 670G it’s become – “Don’t just do it!”

It requires thought, patience, and sometimes it’s a serious waiting game. But what kid wants to – or will – revisit diabetes 20 minutes later, when it keeps pestering with a beep or vibration to calibrate or enter a BG that the system might not be happy with. This is a serious flaw for a system built for all-ages.

My Daughter’s Positives:

  • “No Lows!”
  • “I like having the CGM and pump in one unit; when I’m at basketball, I can look and see what my sensor glucose is.”
  • “That it’s waterproof.”
  • “The sensor/ transmitter is really flat compared to the Dexcom and I like that – it’s less visible under clothes.”
  • “You can silence all of the alarms for a period of time for school and sports.”
  • “The pump prevents post meal highs when you nail the carb load correctly.”
  • “No overnight lows – I sleep better and can sleep in without getting low.”
  • “There is a setting to deliver insulin faster – I like that.”
  • “My A1C is improving a lot.”
  • “I don’t have to eat for diabetes all of the time.”
My Daughter’s Negatives:
  • “The red flashing light brings attention to the pump and me.”
  • “I have to take the pump off to use it now that it is situated vertically, not horizontally.”
  • “You have to count EVERY SINGLE CARB.”
  • “I get popped out of auto mode almost every single night – even with calibrating right before bed.”
  • “The pump alarms don’t wake me up from my sleep.”
  • “I’m still trying to gauge when to use the temp basal for sports or not – I’m not getting consistent results – sometimes the temp basal makes me high.”
  • “Sometimes it doesn’t give me one alert, they keep stacking on top of one another and takes time to work through them all.”
  • “The pump is bigger and more noticeable.”
  • “The battery only lasts 2 weeks and dies quickly – it’s larger – a AA. “
  • “When you calibrate it doesn’t give a number right away like my Dexcom did; I miss my Dexcom.”
  • “It bugs me that I can’t use my Apple watch or see my pump/ CGM data on my phone. Especially when I’m wearing a dress. You always have to pull your pump out to do anything.”
  • “There is a lot of button pushing to do for everything on the pump – much more than previous pump models.”

If you start on this system, I recommend joining one of the 670G Facebook groups. They not only provide a community of support, but it gives us crowd-sourced information from users, outlining the successes, technical issues and workarounds people are using that may not come with our training.

Get Jerry The Bear to Every Child with T1D

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Type 1 Diabetes and Bedtime Snacks

type 1 diabetes and bedtime snacks

With type 1 diabetes we never let our guard down- especially in the middle of the night.  One of the most vulnerable times people may encounter is during sleep which brings about the importance of a bedtime snack.

Safety with type 1 diabetes is always paramount.  When we are at rest, our awake clues of hypoglycemia become dampened.  Lets look at the importance of a solid bedtime snack with recommendations from Sara Pinson, Registered Dietician (RD).

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Dexcom G4 Platinum Continuous Glucose Monitor, a Nurse’s Review

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What is a continuous glucose monitor?

A continuous glucose monitor (CGM) is very self descriptive.  It is continuously measuring serous sugar levels, reporting every five minutes.  Note this is not a blood sugar value from a blood source.  Because of the source you will notice different trends in your sugar levels. [Read more...]

Kids and Continuous Glucose Monitors (CGM)

kids and continuous glucose monitors (CGM)After six months of consecutive Dexcom use this is what I heard last week-
“Mom I want to take a break from my Dex”

Shoot.
The list started to roll…

“I haven’t been able to find it lately”
“I’m tired of wearing it”
“I’m playing basketball”
“There’s too many things on me”…

Sometimes it’s difficult to honor your child’s requests but this one was a sure thing.  Her Dexcom continuous glucose monitor (CGM) was pulled right out and is taking a leave of duty in the cabinet. [Read more...]

Hypoglycemia- How Does it Make You Feel?

Hypoglycemia0 how does it make you feel?

What does hypoglycemia (low blood sugar) really feel like? 

Most parents have no problem interpreting if a blood sugar is low, but can they discipline when their child is hypoglycemic?  It is a frequently asked question and talked about topic amongst parents.

Parents, teachers, and care providers for kids with type 1 diabetes are often left to interpret behaviors.  Is this child misbehaving purposefully or is this a “Houston, we’ve got a problem” moment?  Perhaps this witty child is testing me and using their diabetes as an excuse?  Type 1 diabetes management in a child is simply tricky business.

Every child is unique, therefore parenting is molded to the needs of each individual.  Parents of kids with type 1 diabetes are always sorting through potential diabetes factors, it’s a continuous cycle of what if’s.  I can guarantee there isn’t a parent out there who hasn’t disciplined their child’s behaviors only to figure out they had low blood sugar (hypoglycemia).  You don’t have to be a type 1 diabetes rookie to have it happen to you.  With good intentions, you can relieve yourself of the mental muck that comes along with that… [Read more...]

Diabetes and Constipation, a Secondary Factor

 

Diabetes and digestive issuesYou may be shy to talk about it, but the state of affairs with your bowel can provide important clues to your health.  Lets face it- diabetes and constipation have a symbiotic relationship.

Bowel dysfunctions can erupt from a number of health problems.  Regardless of the cause, there are mechanical issues in the intestine resulting in bowel emptying issues.

My doctor says its “normal”-

Do you believe yourself or your doctor?  Here’s what I think…  You are the one sitting on the toilet and dealing with stomach aches.  You are the one parenting to a child who isn’t feeling well.  I think you are the boss in this department.

If you are plunging the toilet regularly, hearing complaints about tummy aches from your child, see a decreased appetite, painful bowel movements, and a bloated tummy these are signs that something isn’t right down yonder.  Most adults may not want to face the music but they wouldn’t be able to stand the pain without seeking treatment options either.

Stomach aches, constipation, diarrhea and other bothersome bowel issues are not “normal”.  If a pediatrician tells you not to worry about your child’s continued complaints of stomach aches-  you may want to seek another opinion.  Just because it is a child, doesn’t mean their complaints lack validity.

Just to complicate matters, stomach complaints are very subjective.  By this I mean they are open for interpretation.  It’s not like a sore throat that we can look at and swab for strep throat.  Many things can cause stomach upset and complaints.  A good practitioner will start with simple suggestions and step them up accordingly, which is wonderful.

Keep in mind that 1 in 10 people with type 1 diabetes has celiac disease.  Celiac disease has been getting a lot of press in the past few years but not much with its relationship to other autoimmune diseases.

What can I do about it?

If you are having bowel issues find a doctor that you feel comfortable talking to.  It doesn’t have to be a gastroenterologist, begin by talking to your health care practitioner first.

Remember there are many simple things you can do at home to help with constipation.  Increase fluids/ stay hydrated, decrease caffeinated beverages, exercise, maintain good blood sugar control, add fiber to your diet, consider probiotics.

Look for patterns and note what may be the predecessor to the problems erupting.  A child that has both celiac disease and diabetes becomes skilled at interpreting their tummy aches.  You may hear them qualify their stomach distress into many categories such as: a sick stomach, a gluten stomach ache, a high blood sugar stomach ache, a constipated stomach ache, a medicine stomach ache (from Miralax or another medication).  Adults must also learn how to interpret these cues which can be tricky.

Can you still be constipated and have a bowel movement every day?

Don’t be fooled into thinking you or your child couldn’t possibly have constipation because you or they have a bowel movement every day.  I describe the bowel as a play-doh machine, you add a little more play-doh to the top (mouth) and turn the crank (bowel) and play-doh comes out (poop).  But the bowel is never fully cleared of its contents, it just slowly moves down as more food is added to the system.  There is a bottleneck going on causing many issues.

Your health care practitioner may suggest a bowel cleanse out, medications, blood work or further testing.  There are many wonderful products to help ease you or your child’s discomfort that are not laxatives.  Taking medications or giving them to a child for constipation should always be discussed with a practitioner first.  Some choices may do more harm than good over the long run which is not in anyone’s best interest.

How does it affect diabetes control?

Constipation not only causes stomach distress it affects blood sugar control.  This is also true in the opposite direction, as high blood sugars cause constipation.  Diabetes and constipation have a shared relationship.

When food is not moving properly through the digestive tract or is sluggish, it affects absorption of food.  With food staying around longer, you will notice shifts in diabetes control.  When the bowel is moving effectively, you will see improvements in glucose control.  Another word you will hear knocked around is gastroparesis.   Read She Sugar’s article “Gastroparesis, a Factor in Diabetes Control”.

High blood sugars are a serious cause of constipation.  With fluctuations in blood sugars, water is removed from the bowel to help flush excess sugar from the blood stream.  This process causes people with uncontrolled diabetes to live in a constant state of dehydration.  Aim to be hydrated like a fresh grape rather than resembling its dehydrated version, a raisin.

You Know You’re a Type 1 Diabetes Parent if…

 

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I’m sure I sound eerily close to a broken record, but that’s life with type 1 diabetes.  Our foreign language may sound questionable to an untrained ear and sometimes may be misconstrued.

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504 plans, emergency plans, DMMP

Summers over? It’s hard to believe its that time of the year again… Mental lists are forming- uniforms, shoes, lunchboxes, backpacks, haircuts, school supply lists.

What if type 1 diabetes is part of the mix?

Your list of to do’s will be unique and a bit lengthier than the average family.  You may be thinking of school trainings, 504 plans, emergency plans and updating records (amongst the million other things you do as a parent, right?). [Read more...]

Dexcom CGM- A Child’s Perspective

This is a Dexcom CGM review by my child with type 1 diabetes.  The truth in diabetes gear comes honestly through the eyes of a child.
A positive review is certainly one you can count on.  Here is what she has to say about it…

The Dexcom CGM has made my life much easier. 

Dex continuous glucose monitor

Review by E. Doskicz age 10

Here’s Why! [Read more...]

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